Showing posts with label caregiver. Show all posts
Showing posts with label caregiver. Show all posts

Wednesday, June 30, 2021

At Every Turn, Choose Togetherness



At one time or another, everyone has reason to feel isolated within their surroundings. Sometimes, people purposely isolate themselves to get the quiet time they need to focus and concentrate. Other times it is circumstance, such as being the caregiver for a loved-one, that causes isolation.

People who seek isolation usually do not feel lonely. However, involuntary isolation can make people feel entrapped and very, very lonely.

Feelings of loneliness can occur with or without the presence of other people. Parties and other social events can be lonely if the need for interaction and inclusion is not met. At the most basic level, loneliness is missing  cues that remind us of who we are.

There are many things caregivers can do to lessen their feelings of isolation and loneliness. First, self reflection. Frequently, the family caregiver, believing he or she is the only one who can give their loved-one the proper care, seems unable to accept offers of help from family members, friends, community or faith-based organizations. 

When help is accepted, regularly scheduled getaways, hours or days long, can give caregivers the respite they need to relax, reconnect with friends, or to participate in a favorite activity. 

People living with Dementia also experience isolation and loneliness. Friends and family may disappear, and with their disappearance, there are even fewer opportunities for socializing. Eventually, as the condition progresses, isolation and loneliness become inevitable. 

For those in early stages of dementia, living life to its fullness - saying yes to life more than no -  can help them cope with the emotions that come with their diagnosis. Join your loved-one on their “I’ve always wanted to visit or do" lists. Do silly things together, and encourage activities that preserve family history. 

It is equally important to give your loved-one the pleasure and challenge of arranging activities and extending invitations to family and friends. Doing so becomes a declaration of “I am still here.” 

With symptom progression, efforts to reduce isolation and feelings of loneliness require help from family, friends, and professional caregivers. Visits to their home or assisted living community or conversations by phone or video can help your loved-one recall the roles he or she played within the extended family and community. 

Other ways include encouraging your loved-one to leave the confines of their room and spend time where people congregate in common-use areas. Interactions with babies, children, pets and therapy animals may also reduce feeling of lonesomeness. 

Finally, opportunities for self-expression can help people living with Dementia to feel less isolated and alone. There are many simple ways that range from arts, crafts, and music activities to writing poetry and visiting a near-by nature preserve, to connect people who have Dementia to their authentic or most essential self.

Content Contributor: Janet Yagoda Shagam, PhD, is a freelance medical and science writer and the author of "An Unintended Journey: A Caregiver's Guide to Dementia." Available through Amazon(Modified by K. Ogden, team member Dementia Society of America)

The opinions expressed by contributing authors are not necessarily the opinions of the Dementia Society, Inc. We do not endorse nor guarantee products, comments, suggestions, links, or other forms of content contained within blog posts that have been provided to us with permission, or otherwise. Dementia Society does not provide medical advice. Please consult your doctor. www.DementiaSociety.org


Monday, November 16, 2020

5 Online Dementia-Help Programs You Can Access From Home

Now more than ever, accessing helpful Dementia resources from home is essential. With an internet connection, computer, and proverbial click of a button, you can discover many free and low-cost tools.

We’ve rounded up our top five favorite Dementia help trainings and video libraries designed to inform and comfort people living with Dementia and their caregivers. Discover more about them below, including what you’ll learn, the cost (if any), and how to watch.

(1) UCLA Caregiver Training Videos


This online dementia help video library by UCLA is geared for caregivers of people living with dementia. It covers a range of helpful topics that can make it easier to respond to common behaviors and scenarios. Each video comes with a written narrative featuring expert explanations and recommended caregiver responses.

What you’ll learn: This comprehensive Dementia help video library walks you through everyday challenges for people living with Dementia, such as alcohol abuse, driving, lack of eating and paranoid thoughts. Additional caregiver video topics include:

·         Bathing
·         Depression and apathy
·         Hallucinations
·         Home safety
·         Sleep disturbances
·         Taking medications
·         Repetitive behaviors

Cost: Free

How to watch: Browse UCLA’s online video library and select your desired topic. Most videos are available with multi-language subtitles, and English and Spanish audio.

(2) Morningside Ministries Caregiver Training Videos

Morningside Ministries is a San Antonio-based non-profit senior care organization dedicated to “caring for those who cared for us.” They provide care for more than 800 residents in assisted living, memory care, rehabilitation, retirement, and skilled nursing care. 

They’ve produced over 300 caregiver training videos since 2007, demonstrating its commitment to deliver quality and consistent resources.

What you’ll learn: Morningside Ministries features an extensive Dementia help video library on various caregiving topics ranging from finding elder care and combatting loneliness to music therapy and the latest Alzheimer’s research. 

The video, "The Difference Between Dementias," is particularly beneficial to help caregivers understand the top four types of dementia.

Cost: Free

How to watch: Browse the Morningside Ministries video library to explore featured and other dementia help videos by topic.

(3) Living with Dementia Five-Week Online Course

Johns Hopkins School of Nursing offers a free, five-week online Dementia help course on living with Dementia. It’s geared for health professionals and students, people living with Dementia, friends and family caregivers, and others interested in Dementia and quality care.

The course’s goal is to explore the global challenge of living with Dementia for individuals, their families, communities, and society.

What you’ll learn: Each of the five weeks in the course syllabus includes video segments and structured exercises and activities covering:

·         Week 1: The Brain
·         Week 2: The Person
·         Week 3: The Home and Family Environment
·         Week 4: The Caregiving Community
·         Week 5: Social and Policy Changes

Cost: Free to people who want access to the materials without earning a certificate. The fee is $49 for those who would like to earn a certificate upon course completion.

How to watch: Learn more about the dementia help course on the Johns Hopkins School of Nursing website and enroll at Coursera.org to access the videos.

(4) The Dementia Action Plan Workshop

Presented by founder and nationally recognized spokesperson, Kevin Jameson, this approximately one-hour Dementia help video is a recorded live talk filmed with a studio audience at the Philadelphia PBS® station affiliate, WHYY-TV.

What you’ll learn: This engaging Dementia help seminar covers what to know when dealing with Dementia, including straightforward and empowering steps for navigating life as a caregiver or the person living with Dementia.

Cost: Normally a $9.95 mission-related donation, but please be our special guest and use promo code "FREE" to watch at no cost.

How to watch: Click here to access this on-demand Dementia care planning workshop or contact us to request a free DVD.

(5) Dementia Unplugged ™ Webinars

Dementia Unplugged is a monthly educational and conversational webinar developed in cooperation with Jeannine Forrest, Ph.D., R.N. 

It offers dementia help and support for caregivers of people living with Dementia.

What you’ll learn: Covering topics such as housing and living options, caregiver grief, meaningful activities in the home, agitation triggers, and responding to hallucinations and delusions, Dementia Unplugged is a well-rounded Dementia help forum where audience participation is encouraged.

Cost: Free

How to watch: Register to access the monthly sessions via Zoom on the first Mondays of every month at 10 am CST.

Beyond the Dementia help videos and trainings featured on this list, you can find dozens of helpful dementia videos available on our YouTube channel at no cost. We also, invite you to browse our extensive collection of media on our website, including feature films and documentaries for caregivers and people living with dementia to enjoy from the comfort and safety of your home.

Sunday, June 30, 2019

Brain Healthy Diaphragmatic Breathing

Relaxing diaphragmatic breathing focuses on breathing by engaging the diaphragm. Your diaphragm is basically a series of big round, long broad muscles that sit under your lungs. They’re positioned about halfway between your neck and your pelvis.

When they go down (breathing in) they fill your lungs up with air that feeds oxygen into your bloodstream. The diaphragm muscles then go up (breathing out) and it forces that air out. 
Sometimes people have a tendency to suck in their gut, sit improperly in their chair, or have poor posture, which causes them to breathe more from the chest. Chest breathing should be secondary to stomach breathing.

If you look at the way a baby breathes, they breathe through the stomach. Then they breathe in with the help of the chest and the neck muscles. Those secondary muscles of the chest and the neck should come into play after the diaphragm activity.

There’s a simple exercise to show how much you’re incorporating your diaphragm in your breathing. Start by lying on your back, then put your hands on your stomach and take a nice deep breath. You’ll feel your stomach move up towards the ceiling. Your hands will rise and fall.

The goal is to draw about 75% of your breath from the stomach by expanding the lower lobes of the lungs fully. Then the end of the breath "in" should be through the chest. It’s like filling up a sponge with water and then squeezing it out. We’re filling up the lungs with oxygen and squeezing all of it out into our bloodstream.

When you’re breathing in and out really quickly or breathing more through the chest, you’re not getting as much oxygen into your lungs. You end up utilizing about half your lung capacity, and you’re only getting out about half of the carbon dioxide that needs to be expelled. 

There was a great book written in the 1970s by Dr. Benson, called the Relaxation Response. The book is still widely read today. It talks about diaphragmatic breathing, and what he calls Paced Breathing; where we have to breathe through the stomach in order to get the best oxygen exchange. It’s a great book to look at and still relevant today.

Contributor: Dr. Michael Trayford is a Board-Certified Chiropractic Neurologist and Founder of APEX Brain Centers in Asheville, NC. For more information: ApexBrainCenters.com/memory.

The opinions expressed by contributing authors are not necessarily the opinions of the Dementia Society, Inc. We do not endorse or guarantee products, comments, suggestions, links, or other forms of the content contained within blog posts that have been provided to us with permission, or otherwise. Dementia Society does not provide medical advice. Please consult your doctor. www.DementiaSociety.org


Tuesday, January 29, 2019

Dementia is Person-Centered


This may surprise you, but it summarizes the impact Dementia may have on our families: we believe that more than 9 million Americans live with some form of Dementia today. Moreover, although the scientific community is attempting to shed additional light on the numbers, Alzheimer's-type Dementia alone is currently considered to represent more than half of the cases.* Even more shocking, according to the World Health Organization, when all forms of Dementia are combined, they are globally thought to be the 3rd leading cause of death, behind heart disease and stroke in high-income countries.*

Did you know? Dementia is not a disease. It is the umbrella term we apply to those cognitive diseases, e.g., Alzheimer’s, Vascular Dementia, Lewy Body, Frontotemporal and other conditions that can cause Dementia, which is the progressive loss of two or more basic brain functions and the accompanying activities of daily living. Yet, how you outwardly express Dementia is unique to you. People living with Dementia are still whole human beings and can experience joy, sadness, creative expression and much more.

Some would say that the number of deaths attributable to Dementia is significantly underreported due to the stigma associated with the various diseases, lack of education, or other coexisting health issues that can often occur at the end of your life. No matter what the numbers are, Dementia is costly in every way possible, both financially and emotionally.

Rich or poor, or somewhere in-between, you can die prematurely just because of Dementia. Alzheimer's disease, along with many other causes of progressive Dementia, cross cultural and socioeconomic divides. Today there are no cures or effective long-term treatments for almost all forms of Dementia.

However, you can get great satisfaction, and increased inner strength and sense of well-being in caring for someone living with Dementia, but it is still not easy. Even professional caregivers who are paid to give a helping hand, and assist those living with Dementia, experience occasional burnout. Person-centered care, and going further if possible to person-directed care, requires that we always treat individuals uniquely, with respect, and with dignity to the end of their lives. These are just a few of the keys to an optimal quality of life and the best possible tomorrows.

*Sources: see www.dementiasociety.org/home

The opinions expressed by contributing authors are not necessarily the opinions of the Dementia Society, Inc. We do not endorse or guarantee products, comments, suggestions, links, or other forms of the content contained within blog posts that have been provided to us with permission, or otherwise. Dementia Society does not provide medical advice. Please consult your doctor. www.DementiaSociety.org

Thursday, December 7, 2017

The Hazards of Paying the Bills and all that Paper!


Paper may seem innocuous. It arrives our homes daily in the form of mail, magazines and newspapers, and it piles up often in a haphazard manner. We usually don’t give it too much thought. But for many people, especially seniors, and those living with Dementia (or as a caregiver), bills and personal papers can lead to identity theft and fraud.

The best practice for managing monthly bills is to shred all documents that contain personal information. It is recommended that documents be shredded, because thieves have gone so far as to steal garbage to obtain innocent victims’ personal financial information. Many banks and community service organizations offer a free "shredding day," and it's worth packing up a couple of file boxes, worst case, once or twice year, if you don't yet have or can't afford a personal/home shredder.

So, if you are receiving monthly bills in the mail, they should be shredded after paying them, or as soon as possible. Documents that are necessary for tax or other important purposes should be maintained for a period of time specified by your lawyer and accountant. However, such documents should be kept in a small locked, waterproof, fireproof filing cabinet so they can only be accessed by authorized parties.

In February 2016, the New York Times published an article about a scam artist who was able to steal many tens of thousands of dollars from a victim, simply by stealing a check that the victim had placed in the mailbox.

Once the criminal stole the check, he was able to empty significant amounts of funds from the victim’s account, because he had the bank’s routing number and the account number. This incident highlights another opportunity for criminal activity based on unsecured documents:  mail theft.  If you or a loved one are not using online bill paying, consider mailing checks in a secure U.S. Post Office mailbox rather than leaving the envelopes to be picked up in a personal mailbox attached to the house, apartment or out at the end of your driveway.

If you need assistance with bill paying, consider using a service. There are a number of services available throughout the country like the one I founded called, SilverBills. We receive, scrutinize and ensure that your bills are paid accurately and on-time. You no longer need to open envelopes, write checks or remember deadlines. Once enrolled in this type of service, you will likely receive a lot less paper in the mail and that will further decrease the potential for theft and fraud.

A last reminder: securely keep, and don't shred important paper documents like your social security card (which is not really a card - it's more like a piece of thick paper), certain tax, financial, legal, insurance and healthcare documents. Shredding is pretty permanent, so if ever in doubt, ask your attorney, insurance agent, banker or financial professional before shredding.

Contributor: Marci Lobel-Esrig founded SilverBills after witnessing the challenges faced by her elderly relative paying bills on time and correctly. Marci has been a practicing attorney for more than 20 years. Marci received her J.D. from New York University School of Law and her B.A. degree Magna Cum Laude from Columbia College, Columbia University.

The opinions expressed by contributing authors are not necessarily the opinions of the Dementia Society, Inc. We do not endorse nor guarantee products, comments, suggestions, links, or other forms of content contained within blog posts that have been provided to us with permission, or otherwise. Dementia Society does not provide medical advice. Please consult your doctor. www.DementiaSociety.org

Wednesday, February 15, 2017

Getting the Caregiving Help You Need From Family and Friends


"We need to make it right before it goes wrong."

What a wonderful expression! The phrase gives you permission to say, "I need your help."

Yes, it is true that some people, even without your asking, will be more than happy to volunteer their time. However, an uncommitted "Call if you need anything" is not the same as "What do you need? Tell me what I can do to help you."

Many family and friends, perhaps not understanding the responsibilities and challenges you face, will require a little prodding. A good approach is to organize an informal gathering with your family and perhaps a few friends. Lunch or light refreshments may prevent conversation from becoming confrontational. Use video conferencing to include, and to the get input from, those family members who do not live nearby. 


Give examples of what they can do for you and for the loved one you have in common. A request for respite – just a few hours per week – is a good place to start. Explain you need time to relax, to take care of your health and well-being, to socialize with friends, to enjoy a little solitude as well as time to catch-up on lost sleep. 

While you will appreciate their gift of time, there are many other ways your family can make things easier for you. A sibling who does not live nearby can manage your loved one’s finances. Family, friends, and even nearby neighbors can buy groceries, do the laundry, or take responsibility for such things as car, house, or yard maintenance. 


Ask that a family member or a friend accompany you and your loved one to doctor appointments or other places where you anticipate having behavioral difficulties. A promise of going out to lunch after his or her doctor appointment can improve everyone’s mood. 


Use a calendar and sign-up sheet to free yourself from having to think about day-to-day management details. Exchange contact information to make communication as easy as possible. Consider designating a person to be the point of contact. Think about using an online app or website like www.lotsahelpinghands.com.


A few words to caregivers – don’t be a stoic. Accept help! Promises aside, it’s more important to be a good caregiver and not an irritable, exhausted, and burnt-out caregiver.

A few words to family members – don’t assume one person can shoulder all the responsibilities and challenges of caring for the loved one you have in common. It’s unfair and will create ill feelings. Make yourself available even if he or she claims they neither need nor want your assistance. It’s also important that you tell your family member that you appreciate his or her efforts – a gift certificate to a favorite restaurant or for a rejuvenating massage is another way to express your gratitude. Call or e-mail often - but
not too often or at inconvenient times. In addition to inquiring about your loved one, be sure to ask your family member about their general well-being. Be an empathetic and supportive listener. 


And to caregivers, family members and friends - the most important words you can say to one another are "Thank you."


Janet Yagoda Shagam, PhD, is a freelance medical and science writer and the author of “An Unintended Journey: A Caregiver's Guide to Dementia.” Available through Amazon

The opinions expressed by contributing authors are not necessarily the opinions of the Dementia Society, Inc. We do not endorse nor guarantee products, comments, suggestions, links, or other forms of content contained within blog posts that have been provided to us with permission, or otherwise. Dementia Society does not provide medical advice. Please consult your doctor. www.DementiaSociety.org



 

Saturday, May 28, 2016

Money Does Matters


For many families, finances and the cost of dementia care can be one of their greatest worries. Families hope there are sufficient assets to meet the expenses for the next four to 10 years. According to a Care.com Usage and Attitude Family Caregiver survey, in 2014, over 50 percent of families spent more $5,000 per year to cover out-of-pocket expenses. The same survey reveals that seven percent of survey respondents report having spent more than $50,000 per year to cover the costs of their loved-one’s care.

Talking about personal finances is often difficult. To make these initial family discussions go as smoothly as possible, invite an elder-care lawyer, a financial advisor, or a geriatric care manager to guide discussion and offer their expertise. The goals of this and ensuing conversations are to define needs and expenses, and based on this information, develop a realistic financial plan. 


Dementia care is more than house utilities and groceries. Home expenses also include rent or mortgage payments, house maintenance, home and car insurance, as well as assorted federal, state and local taxes. Dementia care also involves the out-of-pocket deductibles and co-pays associated with the diagnostic procedures and treatments for dementia and any other medical conditions your loved-one may have. Do not overlook the expenses of such things as personal care supplies, equipment rental and purchases, adult day care and assisted living fees.


Sadly, circumstances may be one where your loved-one has neither the sufficient savings nor income to pay for the services he or she needs. 


What happens then? Sometimes families are able and willing to pay the difference--and sometimes not. Long-term care insurance is expensive, must be purchased well before need, and is not long-term in the sense of “forever care.” Often families must resort to state and federally-funded programs. 


Medicare, parts A, B, and D and most private insurance policies pay only for expenses not related to having dementia. However, your loved-one may be eligible for dementia coverage under one of several Medicare Special Needs Plans or “SNPs.”


There are other avenues worth exploring – all of which have specific eligibility requirements. Some of these are: Medicaid, a program that helps very low income people get the healthcare they need and the Program of All-Inclusive Care for the Elderly (PACE) that provides comprehensive medical services to Medicare and Medicaid enrollees. 

The United Stated Veterans Administration (VA) offers a broad range of services to help veterans who have dementia. To take advantage of the various VA programs and services, the veteran must be enrolled in the VA healthcare system. While the veteran does not have to have a service-related injury to receive dementia benefits, the veteran must have an honorable or a general discharge. 


Other strategies to supplement your loved-one’s income include a Home Equity Conversion Mortgage (reverse mortgage), the conversion of certain kinds of life insurance into long-term care insurance, as well as borrowing against the value of a life insurance policy. Disability insurance is another resource when dementia makes employment no longer possible.  


Community not-for-profit organizations offer many helpful services that can range from household repairs and yard maintenance to elder daycare programs and caregiver respite grants. Sliding scale fees are another not-for-profits feature. Therefore, your loved-one will have to meet eligibility criteria, to receive a reduced rate.



Janet Yagoda Shagam, PhD, is a freelance medical and science writer and the author of “An Unintended Journey: A Caregiver's Guide to Dementia.” Available through Amazon.

The opinions expressed by contributing authors are not necessarily the opinions of the Dementia Society, Inc. We do not endorse nor guarantee products, comments, suggestions, links, or other forms of content contained within blog posts- that have been provided to us with permission, or otherwise. Dementia Society does not provide medical advice, please consult your doctor. www.DementiaSociety.org