5 Online Dementia-Help Programs You Can Access From Home

Now more than ever, accessing helpful Dementia resources from home is essential. With an internet connection, computer, and proverbial click of a button, you can discover many free and low-cost tools.

We’ve rounded up our top five favorite Dementia help trainings and video libraries designed to inform and comfort people living with Dementia and their caregivers. Discover more about them below, including what you’ll learn, the cost (if any), and how to watch.

(1) UCLA Caregiver Training Videos

This online dementia help video library by UCLA is geared for caregivers of people living with dementia. It covers a range of helpful topics that can make it easier to respond to common behaviors and scenarios. Each video comes with a written narrative featuring expert explanations and recommended caregiver responses.

What you’ll learn: This comprehensive Dementia help video library walks you through everyday challenges for people living with Dementia, such as alcohol abuse, driving, lack of eating and paranoid thoughts. Additional caregiver video topics include:

·         Bathing

·         Depression and apathy

·         Hallucinations

·         Home safety

·         Sleep disturbances

·         Taking medications

·         Repetitive behaviors

Cost: Free

How to watch: Browse UCLA’s online video library and select your desired topic. Most videos are available with multi-language subtitles, and English and Spanish audio.

(2) Morningside Ministries Caregiver Training Videos

Morningside Ministries is a San Antonio-based non-profit senior care organization dedicated to “caring for those who cared for us.” They provide care for more than 800 residents in assisted living, memory care, rehabilitation, retirement, and skilled nursing care. 

They’ve produced over 300 caregiver training videos since 2007, demonstrating its commitment to deliver quality and consistent resources.

What you’ll learn: Morningside Ministries features an extensive Dementia help video library on various caregiving topics ranging from finding elder care and combatting loneliness to music therapy and the latest Alzheimer’s research. 

The video, "The Difference Between Dementias," is particularly beneficial to help caregivers understand the top four types of dementia.

Cost: Free

How to watch: Browse the Morningside Ministries video library to explore featured and other dementia help videos by topic.

(3) Living with Dementia Five-Week Online Course

Johns Hopkins School of Nursing offers a free, five-week online Dementia help course on living with Dementia. It’s geared for health professionals and students, people living with Dementia, friends and family caregivers, and others interested in Dementia and quality care.

The course’s goal is to explore the global challenge of living with Dementia for individuals, their families, communities, and society.

What you’ll learn: Each of the five weeks in the course syllabus includes video segments and structured exercises and activities covering:

·         Week 1: The Brain
·         Week 2: The Person
·         Week 3: The Home and Family Environment
·         Week 4: The Caregiving Community
·         Week 5: Social and Policy Changes

Cost: Free to people who want access to the materials without earning a certificate. The fee is $49 for those who would like to earn a certificate upon course completion.

How to watch: Learn more about the dementia help course on the Johns Hopkins School of Nursing website and enroll at Coursera.org to access the videos.

(4) The Dementia Action Plan Workshop

Presented by founder and nationally recognized spokesperson, Kevin Jameson, this approximately one-hour Dementia help video is a recorded live talk filmed with a studio audience at the Philadelphia PBS® station affiliate, WHYY-TV.

What you’ll learn: This engaging Dementia help seminar covers what to know when dealing with Dementia, including straightforward and empowering steps for navigating life as a caregiver or the person living with Dementia.

Cost: Normally a $9.95 mission-related donation, but please be our special guest and use promo code "FREE" to watch at no cost.

How to watch: Click here to access this on-demand Dementia care planning workshop or contact us to request a free DVD.

(5) Dementia Unplugged ™ Webinars

Dementia Unplugged is a monthly educational and conversational webinar developed in cooperation with Jeannine Forrest, Ph.D., R.N. 

It offers dementia help and support for caregivers of people living with Dementia.

What you’ll learn: Covering topics such as housing and living options, caregiver grief, meaningful activities in the home, agitation triggers, and responding to hallucinations and delusions, Dementia Unplugged is a well-rounded Dementia help forum where audience participation is encouraged.

Cost: Free

How to watch: Register to access the monthly sessions via Zoom on the first Mondays of every month at 10 am CST.

Beyond the Dementia help videos and trainings featured on this list, you can find dozens of helpful dementia videos available on our YouTube channel at no cost. We also, invite you to browse our extensive collection of media on our website, including feature films and documentaries for caregivers and people living with dementia to enjoy from the comfort and safety of your home.

Hearing Test Protocol For Those With Dementia

For most of us, we are busy with our daily lives engulfed with family activities, work, education, and all the things that consume our time. We never give it a thought and often take it for granted how our senses keep us connected with our world.

As we age there are changes confronting us in the realm of our health and quality of life. These changes are age-related and present a disability to be addressed and remedied. Most of these are hearing, vision, speaking, various motor skills, and cognition. Hearing loss is estimated to affect some 39 to 50 million Americans.  

Research has indicated that almost three out of every four individuals age 80 and above will have at least one disability to deal with. Most often, hearing loss is most common. Dr. Frank R. Lin, MD of Johns Hopkins University has been one of the leading researchers over the past ten years to make the connection with untreated hearing loss being a provocateur in the area of Dementia.

Our loved ones and senior friends impacted with hearing loss and some type of Dementia are especially at risk for decreased quality of life. Often these people require special care in a licensed facility with a professional medical staff 24/7.

Ideally, I recommend to every one of my patients to have a complete audiological evaluation on an annual basis. Following this guideline as an associated part of having an annual physical by their family physician, enables the audiologist to detect and monitor adverse changes in hearing acuity, abnormalities, and other medical issues to be addressed.  

This evaluation provides the baseline and documentation on future tests that help the patient later in life. The protocol includes, but is not limited to: case history, otoscopic inspection, pure tone (air & bone) audiometry, speech audiometry, tone decay, tympanometry, acoustic stapedial reflexes, and distortion product otoacoustic emissions testing.

One avenue where this documentation will be critical is in handling hearing health care for those requiring amplification and knowing what the previous status was for Dementia-affected patients.

For the reader of this article, you would undoubtedly be able to participate in and complete an audiological evaluation administered by an audiologist. For a person with advancing Dementia, in a facility such as a nursing home or special care unit, it may that up to 95% cannot complete or tolerate the standard evaluation. Even though Congress in 1987 mandated a Minimum Data Set for a required evaluation of incoming residents to a facility, it does not guarantee a successful finding, in hearing, comprehending speech, and producing language.

For those people with mid to later stages of Dementia, alterations in testing protocol could be required. Behavioral tests are mostly eliminated from the battery.

There are many considerations in handling hearing loss, amplification, and proper examination and assessment for the person with Dementia. Since much of the protocol below is rather scientific-sounding and not easily expressed in lay terms, please print out this blog post and/or bring the information to your doctor to get the process underway.

A suggested protocol may include:

• Case history – Since the patient may not be able to provide complete and accurate information, a family member or friend should be queried. This step will require a review of previous audiologic studies.

• Otoscopic inspection – The audiologist will utilize an otoscope to examine the outer ear canals and visually assess for any apparent abnormalities.

• Audiometry for pure tone and speech stimuli – This component requires participation by the patient and test reliability in subjective responses. There will be some that may not tolerate the headset or canal inserts nor provide reliable information.  Research has shown that only 5% may be able to complete this step.

• Tympanometry and acoustic stapedial reflexes; impedence testing – This assessment will show whether a perforation, abnormal middle ear pressure, or fluid is present and requiring otologic intervention.

• Distortion product otoacoustic emissions (DPOAE) testing – This is a truly objective test to determine the status of the outer hair cells of the cochlea.  Normal responses are seen in threshold level up to 35 dBHL. The frequency range of DPOAE is 1500 to 6000 Hz.

• Amplification check – The doctor of audiology will clean, check, repair as needed, readjust, and refit the patient’s amplification if they are a current wearer. If replacement is indicated, this will be noted.  As for a new fitting to a patient who has not previously been fitted, it will not be advised due to issues involving reliability of the assessment and tolerance of fitting.

If you wish to explore this subject further, please contact a board certified & licensed private practice doctor of audiology today. 

Hearing loss, once addressed, may result in a much richer and more meaningful quality of life for all those affected!

Contributing Author: 
Dr. Patrick M. Murphy, Au.D., M.Ed., CCC-A, FAAA
http://www.murphyhearingservices.com/

The opinions expressed by contributing authors are not necessarily the opinions of the Dementia Society, Inc. We do not endorse nor guarantee products, comments, suggestions, links, or other forms of content contained within blog posts that have been provided to us with permission, or otherwise. Dementia Society does not provide medical advice. Please consult your doctor. www.DementiaSociety.org